Pre-Op

Soooo yes I know, I'm the worst blogger ever! I said I would have dates a while a go and I did. I just didn't ever get around to blogging it. SORRY! I actually had my Pre-Op appointment today. It was just A LOT of paperwork and then lab work. My surgery date is June 13th. The lady that called me made sure to let me know it was Friday the 13th and then even said EEK! :{ I am not a superstitious person but I still didn't need to hear that, I mean really what did she think that would contribute to the conversation?

Oh well, that happened.
Surgery is Friday, June the 13th. From now until then I plan to have tons of fun with my family and keep trucking along with my sewing projects. It's been fun having time to just sew whatever I want.

I made these cargo Shorts for Seth from the Peek-A-Boo Pattern Castaway Cargos. I love that I finally found something to make for Seth that he thought was cool. He had really been wanting corduroy shorts for some reason.

This is The Adelaide A-Line dress from Seamingly Smitten. I love how the fabric fit over this pattern!                   

This year I made Roni's Easter dress! I used the Peppermint Swirl Dress Pattern from Candy Castle Patterns. This dress looks like a dream and it came together so easily! I'm already planning a rainbow swirl version of this for her too!







 We are going to celebrate Father's Day a week early since I will be in the Hospital for the actual day. Derek is taking leave and is happy to get to spend some time with the kids. It's been really cute listening to Derek and the kids plan all the fun stuff they are going to do, I just hope that they remember to feed me.
This should be an interesting summer!!!
-Savanna

May 1st

   So.... Derek and I met Dr. Boggan today. Dr. Boggan was very kind and friendly. He feels that due to my complete lack of CSF flow behind the brain Decompression Surgery is not just recommend but really needed.
    I feel hopeful. I've always known that things could get worse but I finally feel like I'm doing some thing that kind (long term) make things better. I am aware that recovery will be long and hard with ups and downs. Please remember that surgery is not a cure and I feel like I have a realistic expectation for life after surgery. I was told that I should expect to have surgery end of May or beginning of June and I should have an actual date for pre-op and surgery in about a week. Chiarians that have had surgery are lovingly referred to as a Zipperhead because of the appearance of the scar after surgery. I like that there is a name for, it feels more like owning it as opposed to being embarrassed by it. My hair is longer so once I don't have to have it pulled back, so it doesn't irritate the incision, it probably will not be visible at all or that's what Dr. Boggan said. It sort of feels like it will be a badge of honor showing I made it! The scar is just proof I made it, I was tougher, I was braver, I was more than my Chiari!
Want to see some Zipperheads? click here
Everybody has a different size scar and different amount of hair that is shaved. If you see some and think AHHH they have no hair, don't panic. Many people choose to either cut their hair very short or shave it themselves before surgery. I hear it is itchy and obnoxious but I think I'm going to try really hard to hold out and just let the Dr. cut/shave what's needed. I'm already giving up part of my head, I would like to keep as much as I can! :)


   I will let you all know when I have an actual date, until then thank you all for your continued support.

- Savanna